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Thalassaemia International Federation

PO Box 28807
2083 Nicosia
Cyprus

Tel: + 357 22 319 129
Fax: + 357 22 314 552
Email:
thalassaemia@cytanet.com.cy

Business hours: 9am - 3pm (Monday–Friday GMT+2)

 

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TIF MEMBER ASSOCIATIONS

Please note this section only contains links to those member associations that have websites.

Albania
Albanian Thalassaemics Association ATA (Voting)

Argentina
Thalassaemia Foundation of Argentina FUNDATAL http://www.fundatal.org.ar/

Australia
Australian Thalassaemia Association (Voting) http://www.tsv.org.au/
Thalassaemia Society of New South Wales (Voting) http://www.thalnsw.org.au/
Thalassaemia Australia Inc. www.tsv.org.au

Azerbaijan
Association Parents of Children with Thalassaemia Savad Dunyasi (Voting)
Azerbaijan Thalassaemia Society INSAN (Voting)

Bahrain
Bahrain National Hereditary Anemia Society (Voting)

Bangladesh
Bangladesh Thalassaemia Society (Voting)
Bangladesh Thalassaemia Foundation http://www.thals.org/
Thalassaemia Welfare Centre Bangladesh

Belgium
Association Belge de Thalassémie ASBL http://www.abthalassemie.be/
Association Belgo-Mediterranéenne de Lutte Contre la Thalassemie

Brazil
Associacao Brasileira dos Thalassaemicos ABRASTA (Voting) http://www.abrasta.org.br/

Bulgaria
Bulgarian Anti-Thalassaemia Organisation BATA (Voting) http://www.anti-thalassaemia.bg/
Thalassaemics' Organisation in Bulgaria TOB http://www.otbulgaria.com/

California
Northern California Comprehensive Thalassemia Center http://www.thalassemia.com/

Cambodia
Cambodian Thalassaemia Association

Canada
Thalassaemia Foundation of Canada (Voting) http://www.thalassemia.ca/
The Vancouver Thalassaemia Society of B.C. http://bcthalassemia.org/

China
Childrens Thalassaemia Foundation Ltd (Voting)
Thalassaemia Association of Hong Kong http://www.thalassaemia.org.hk/

Cyprus
Pan-Cyprian Antianaemia Association (Voting)

Egypt
Egyptian Thalassaemic Friends Association (Voting)

France
Association Francaise de Lutte Contre les Thalassaemies http://pagesperso-orange.fr/aflt/index1.htm

Germany
Thalassemia Verein Ulm http://www.thalassaemieverein-ulm.de/
Interessengemeinschaft Sichelzellkrankheit und Thalassaemia e.V.

Greece
Thalassaemia Federation of Greece (Voting) http://www.thalassaemia.gr/enter.html
Thalassaemia Association Korinthou

Pancyprian Thalassemia Association  http://www.thalassemia.org.cy

India
Thalassaemics India (Voting) http://www.thalassemicsindia.org/
Federation of Indian Thalassaemics
Foundation Against Thalassaemia, regd. http://www.thalassaemia.in/
Indian Association of Blood Cancer & Allied Diseases http://www.cancerlifeblood.org/
Mumbai Thalassaemic Society
National Thalassaemia Welfare Society (Regd) http://www.thalassaemiaindia.org/
Nivethan Trust http://www.nivethan.org/
Parents Association Thalassaemic Unit Trust
Research Society of BJW Hospital for Children
Thalassaemia & Sickle Cell Society of Bombay
Thalassaemic Children Welfare Association
Thalassaemia Society of India

Indonesia
Yayasan Thalassaemia Indonesia (Voting) http://www.thalassaemia-yti.or.id/

Iran
Charity Foundation For Special Diseases (Voting) http://www.cffsd.org/
Iranian Thalassaemia Society (Voting) http://iranianthalassemia.com/
Esfahan Thalassaemia Society

Iraq
Ninava Thalassaemia Society, Mosul (Voting) http://www.ninavasemia.blogspot.com/
Iraqi Thalassaemia Association

Israel
Israeli Association of Thalassaemia & Sickle Cell Anemia (Voting)

Italy
Association Veneta per la Lotta alla Talassemia AVLT (Voting) http://www.avlt.it/
Associazione Talassemici e Drepanocity Lombardi ONLUS (Voting)
Fondazione Italiana ''L. Giambrone" per la Guarigione dalla Talassemia (Voting) http://www.fondazionegiambrone.it/
Associazione Ligure Talassemici
Associazione lotta allaTalassemia di Ferrara http://www.altferrara.it/
Associazione Talassemici Torino http://www.talassemicitorino.it/
Nuova Associaz. Talassemici Italiani

Jordan
Jordanian Thalassaemia & Hemophilia Society (Voting)

Lebanon
Chronic Care Center (Voting) http://www.chroniccare.org.lb/

Luxembourg
Etudier Comb. les maladies de l' haemoglobin

Malaysia
Federation of Malaysian Thalassaemia Societies (Voting)
Johor Thalassaemia Society
Persatuan Thalassaemia Malaysia
Pulau Penang Thalassemia Society http://www.penthal.org/

Maldives
Society for Health Education (Voting) http://www.she.org.mv/

Malta
Thalassaemia Awareness Maltese Association

Morocco
Thalassaemia-Haemoglobin Diseases Association (Voting)

Nepal
Nepal Thalassaemia Society (Voting)

Netherlands
OSCAR Netherlands http://www.thalassemie.nl/

Pakistan
Pakistan Thalassaemia Welfare Society, redg. (Voting)
Thalassaemia Society of Pakistan (Voting) http://www.thalassaemia.org.pk/
Abbotonians Medical Association http://www.ama.org.pk/
Kashif Iqbal Thalassaemia Care Centre
Pakistan Blood Transfusion Services
Thalassaemia Federation of Pakistan http://www.tfp.org.pk/
Thalassaemia Patients & Parents Society of Pakistan
Thalassaemia Free Pakistan http://thalassemia.com.pk/

Palestine
Palestine Avenir Foundation (Voting)
Thalassaemia Patients' Friends Society TPFS (Voting)

Philippines
Mindanao Thalassaemia Foundation Inc

Portugal
Associacao Portuguesa de Pais e Doentes com Hemoglobinopatias http://www.appdh.org.pt/

Romania
Asociata Persoanelor cu Thalasemie Majora (Voting) http://www.thalasemia.ro/thalasemie.html

Singapore
Club Rainbow Thal. Major Support Group   http://www.clubrainbow.org/
Thalassemia Society (Singapore) http://www.thalsociety.org/

South Africa
South African Thalassaemia Association (Voting) http://www.thal.org.za/

Spain
Spanish Thalassaemia Association ALHETA   http://www.alheta.com/

Sri Lanka
Kurunegala Thalassaemia Association (Voting)

Syria
Thalassemia Patients and Hereditary Blood Diseases (Voting)

Taiwan
Taiwan Thalassaemia Association http://tta.bexweb.tw/

Thailand
Thalassaemia Foundation of Thailand (Voting)

Trinidad
Society for Inherited & Severe blood Disorders

Tunisia
Alphatt Tunisie (Voting)

Turkey
Akdeniz Thalasemi Dernegi (Voting)
TADAD Thalassaemia Patient Parent Association (Voting)
Thalassaemia Federation of Turkey (Voting) http://www.talasemi.org/
Foundation of Mediterranian Blood Disease

United Arab Emirates
Emirates Thalassaemia Society (Voting) http://www.thalassemia.org.ae/
UAE Genetic Diseases Association http://www.uaegda.ae/

United Kingdom
North England Bone Marrow & Thalassaemia Association NEBATA (Voting)

http://www.cmft.nhs.uk/directorates/nebata/nebata.asp
United Kingdom Thalassaemia Society (Voting) http://www.ukts.org/
Oscar Sandwell http://www.oscarsandwell.org.uk/

United States of America
Cooley's Anemia Foundation (Voting) http://www.cooleysanemia.org/

PATIENT RESOURCES

Thalassaemia Patients and Friends http://www.thalassemiapatientsandfriends.com/
Sickle Cell Society, UK http://www.sicklecellsociety.org/
Sickle Cell Disease Association of America http://www.sicklecelldisease.org/
European Patients Forum (EPF) http://www.eu-patient.eu/
International Alliance of Patients' Organizations (IAPO) http://www.patientsorganizations.org/
Sickle Cell and Thalassemia Patients Network, US http://www.sctpn.org/
PatientView http://www.patient-view.com/
European Organisation for Rare Diseases (EURORDIS) http://www.eurordis.org/
Blood - the vital connection http://www.hematology.org/patients
International Federation of Blood Donor Organizations http://www.fiods.org/

MEDICAL RESOURCES

HIV information from WHO http://www.who.int/topics/hiv_infections/en
HIV and Hepatitis   http://www.hivandhepatitis.com/
International Consortium for Blood Safety (ICBS)http://www.icbs-web.org/
International Society for Blood Transfusion (ISBT)
http://www.isbt-web.org/
Blood safety information from WHO http://www.who.int/topics/blood_safety/en
ITHANet web portal for thalassaemias and haemoglobinopathies http://www.ithanet.eu/
European Genetics Foundation http://www.eurogene.org/portale/index.php
American Society of Hematology – Find a Hematologist
http://www.talassemiaricerca.it/
THAL-Lab, Italy http://www.talassemiaricerca.unife.it/

EUROPEAN AND INTERNATIONAL ORGANIZATIONS

European Medicines Agency (EMEA) http://www.emea.europa.eu/
US Food and Drug Administration (FDA) http://www.fda.gov/Drugs/default.htm
European Public Health Alliance (EPHA) http://www.epha.org/
European Platform for Patients' Organisations, Science and Industry (EPPOSI) http://www.epposi.org/
EU Executive Agency for Health and Consumers (EAHC) http://ec.europa.eu/eahc/
European Organisation for Rare Diseases (EURORDIS)http://www.eurordis.org/
Drug Information Association (DIA)
http://www.diahome.org/DIAHome
EU Rare Diseases Task Force http://www.rdtf.org/
Cure2Children Foundation http://www.cure2children.org/

WORLD HEALTH ORGANIZATION (WHO)

WHO main site http://www.who.int/
Non-communicable diseases  http://www.who.int/topics/chronic_diseases/en/
Global Collaboration on Blood Safety (GCBS) http://www.who.int/bloodsafety/gcbs/mission/en

WHO REGIONAL OFFICES:

Africa http://www.afro.who.int/
Americas
http://www.paho.org/
South East Asia http://www.searo.who.int/
Europe
http://www.euro.who.int/
Eastern Mediterranean http://www.emro.who.int/
Western Pacific http://www.wpro.who.int/

Calendar of Events

International Thalessemia Day