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Isabella's Journey

Isabella's Journey is a captivating story about one famiily's fight against the blood disorder thalassemia. Engage in a heartfelt journey told from a Mother's perspective after her daughter Isabella is diagnosed with the blood disorder thalessemia major.

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Serafina Sammarco

I truly hope that this book will inspire and give hope to the many sufferers of poor health. I’m here to say that it is possible to be faced with tragedy and not only survive it, but learn to appreciate life with all its wonders.

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Isabella

The main purpose of this book is to provide some insight on the genetic blood disorder thalassemia, and the rippling effects that it has on patients and their families. Even though it has been a very difficult journey filled with obstacles to surpass we, who have been left behind, continue to live productive and joyous lives.

Laughter & Love

This is a story of one family that was faced with the unimaginable task of accepting the imminent death of a child. My dream, as unrealistic as it may seem, is that one day thalassemia may be totally eradicated. My other goal is to provide some hope and inspiration to those families who are currently dealing with Thalassemia.

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What is Thalassemia

Thalassemia is a severe and particular form of anemia in which the body does not produce enough...

 

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Types of Thalassemia

There are two main types of Thalassemia: alpha and beta...

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Thalassemia Treatments

The children that are born with thalassemia major survive by being treated...

 

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Thalassemia Resources

Links and Resources to Thalassemia Associations and Foundations 

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serafinaThe main purpose of this book is to provide some insight on the genetic blood disorder thalassemia, and the rippling effects that it has on patients and their families. I truly hope that this book will inspire and give hope to the many sufferers of poor health. I attempt to explain thalassemia in simple layman’s terms, and inbook cover s no way claim to be a medical expert. This is a story of one family that was faced with the unimaginable task of accepting the imminent death of a child. Even though it has been a very difficult journey filled with obstacles to surpass, even after Isabella’s death, we, who have been left behind, continue to live productive and joyous lives. I’m here to say that it is possible to be faced with tragedy and not only survive it but learn to appreciate life with all its wonders.

Isabella Sammarco

Although Isabella's life was short, it was full of memorable moments that will always be cherished and remembered. 
Feb 27 2013

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What is Thalassemia

Thalassemia("thal-uh-SEE-mee-uh") is a severe and particular form of anemia in which the body does not produce enough healthy red cells. It is these cells which carry oxygen from the lungs to all parts of the body. Therefore, a shortage of these cells means that the body is deprived of oxygen.The severity of the disease can vary from one individual to another, depending on a number of reasons.

There is a theory that because the thalassemia trait has some resistance to malaria, the disease has evolved in regions where malaria is prevalent.

The two main types of thalassemia are called alpha and beta thalassemia:

   •  Individuals with alpha thalassemia do not produce enough alpha globin.
   Those with beta thalassemia do not produce enough beta globin.

There are a number of different forms of alpha and beta thalassemias, with symptoms ranging from mild to severe. Thalassemia is among the most common genetic disorders worldwide.

Please see our Resources and Links for more detailed information on Thalassemia and the associations and foundations pioneering for a cure. 

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Isabella's Journey

Serafina Sammarco Author

Isabella's journey is a captivating story about one famiily's fight against the blood disorder thalassemia. Engage in a heartfelt journey told from a Mother's perspective after her daughter Isabella is diagnosed with the blood disorder thalessemia major. Isabella's Journey shares the hardships Isabella faces as she is challenged by her disorder and her struggle to survive...

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